Writing
Mapping the patient journey
A patient-centered map for better care
Children with Pediatric Growth Hormone Deficiency (PGHD) have a challenging journey—from delayed growth and tricky diagnoses to managing long-term treatment. To understand their experience, we spoke with 62 families across Europe and created the first-ever PGHD patient journey map.
We described six key stages—awareness, diagnosis, treatment start, maintenance, and transition to independence—each filled with unique struggles, from confusion and emotional stress to treatment fatigue. This is an efficient tool to focus on the needs of patients, and to design solutions that fit well.
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The Pediatric Growth Hormone Deficiency Patient Journey: Identifying Opportunities for Digital Health Interventions - PubMed
Pediatric growth hormone deficiency (PGHD) is a chronic condition where the pituitary gland fails to produce sufficient growth hormone, leading to delayed growth and developmental challenges. Patient journey maps can provide insight into pain points and potential opportunities for new or improved in…
Guido Giunti